We just can't believe it. Stephanie's lumbar puncture on Wednesday had an opening pressure of 17.2! Not only was that just about the lowest we had seen since she first got sick 2 years ago, it also meant that she was now eligible for the Corpus Callosotomy brain surgery. My husband and I both cried in the procedure room out of pure relief and a sense of hope.
It quickly set in though that we were now faced with dealing with the reality of what happens next. I am sure we both thought, "Be careful what you wish for, it just may come true". It's a very strange feeling to somehow be elated at the prospect of Stephanie being able to have this brain surgery when only 5 months ago the thought of her undergoing such a procedure was almost excruciating.
Well, she's scheduled for surgery Monday, July 23, 2012. Not much time for a parent to process all the questions, concerns, and emotions that are keeping me awake at this very moment. I will be able to post updates to this blog via my iPhone and let everyone know how she does during surgery and the recovery process. Stephanie will be going into PICU (Pediatric Intensive Care Unit) immediately after surgery and may stay there for a day or two before being moved to a regular ward for the rest of the week.
Big, big hugs to our friends and family for their love, support and prayers as we take this very huge step to hopefully provide some palliative care for our baby girl!
