After a long and drawn out stay at Children's Hospital, Stephanie and I finally came home last Saturday evening. 27 days in hospital was not what we were expecting when we were admitted on July 23rd for Stephanie's corpus callosotomy surgery. After getting sick a few days after surgery, with vomitting, fever spikes, not wanting to eat or drink and not wanting to sit up or walk, it was determined that she may have some form of infection...meaning meningitis. Because she was already on antibiotics when she was tested, doctors did not accept the negative test results and decided to treat Stephanie with a full course of antibiotics for bacterial meningitis. This meant another 3 weeks of two types of antibiotics.
I am happy to say that she is doing well at home this week! She is tired and does lay down alot but she is eating and drinking well. She's having some post antibiotic bowel issues but nothing we can't handle! We'll be meeting with the neurologist on September 19th to assess her recovery, her seizures and what the next course of action will be. If Stephanie continues to have seizures that involve both sides of her body, we may have to do another MRI to determine how much of the callosum was severed and if we need to have the second surgery to severe it completely. As always, time will tell...
Welcome home Stephanie!!!!
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